Right Up My Aili: The Final Small Fry (Part 1)

It’s another sultry evening in west Nash as I type this. I don’t speak on my behalf when I say I’m glad recent storms have finally subsided.

For most of you reading this, you know how much I love storms. When I’m in one, I’m one step closer to awe – one step closer to life making more sense. After all, the winds within are never far away.

Of course, you wouldn’t know it given the script of 2023’s first half, a stretch in which the theme of forced rest amidst evolving pursuits have re-emerged. While the in-house volume has emphatically increased, in several areas of life, Lys and I have been forced to mute the noise to maintain heading.

And so it is, I pen this post during the last normal weekend for the foreseeable future. Houston, start down the countdown. We’re less than six days away from the final small Fry making her arrival.

While much attention this year has been given to the Juby Journey book, occasionally, it helps to zoom out to 20,000 feet and refresh a different page. Personally, I find the practice not just helpful but vital – a necessity during such disorienting days.

This dichotomy, man. It’s unlike anything I’ve ever felt and likely will ever feel again.

On one hand, the grief of losing Juby last September has finally started to subside. Slowly but surely, Lys and I are getting there though as I’ve said before: You can’t ever quantity a journey through grief and its cycles. You can only paint a picture through watercolor language. Even then, you’re talking about a mere speck on a 10′ x 10′ canvas of emotions. We’re moving in the right direction – an oasis there, a ray of sun there. Maybe someday, we’ll be out of the woods for good.

On the other, you have the anticipation of Aili, a golden surprise in what has been the smoothest pregnancy by a wide margin. Such a sweet kiss from the Lord as part of a redemptive narrative unfolding. Who would have guessed it based on what happened two years ago around this time?

Still, when you lose a child, you’re never the same again. And you certainly feel the rift when joyous occasions are on the horizon. As Lys and I shared in our Vandy grief support group in April, when you go through something like what we did last year, an organic strengthening occurs when perseverance is compelled to a life on the lines, when hope is forced to the end of its rope. Eventually, there are moments when the despondency softens and you realize you’ve made strides in becoming the person you’ve always wanted to be.

But there is a cost, one tracing back to that same hope ironically enough. While endurance may have fortified your faith, your capacity to positively anticipate is broken, at least bent. And it’s here where the bizarre paradox starts to unveil. Yes, you’re grateful for the forging through fire. Still, you can’t help but wonder why so many shades of happiness are gone. Perhaps they’ve melded into scars and the only possible way to sense them is through the prelude of thanksgiving?

Whatever the case, while eager enthusiasm is much harder to come by, our desire to look up and receive fresh perspective remains at ease. Take it from the battle-tested: All those sermons about intentionality in referencing God, I’m telling you…they aren’t Sunday morning fluff. At some point, you grow up and realize there is no other way to find those morsels of encouragement. Sometimes, all you can do is pray. And that’s okay.

As for Lys and I, we’re doing what we’ve been doing for so long now – one day at a time, one hour at a time, keeping hearts transparent and lifelines secure. To be honest, I feel a tad guilty – I probably should be more excited about Aili’s arrival on Friday. The last time one of our own came into the world, there was so much chaos and hostility. Forgive me, Lord, I’m just a weak man walking on the sea. I believe in You and yet reserve my joy to seeing the evidence of health without compromise, your breath in her lungs as we pour out our praise. At this point, I don’t contend for normality but vibrancy in abundance. Hence, why Aili is the name we’re going with. In dark depths, when shadows are at their most opaque, there’s a bright, shining light in our midst reminding us He’s there looking out for us.

As for life itself, the internal knots will eventually unwind and streams once abandoned will be returned to. God knows what we’ve had to release in the short term and why. Certainly, where the help has and hasn’t occurred this year has been telling. Like a weather vane turning in slow motion, the signs aren’t lost on me. Glory to God, He speaks through and to voids, even ones unauthorized, to reach us with what only He can provide.

Yet, despite the mysteries and unknowns, what I can say is this: While the heart is weak and willing, as far as it be with us, we will relish the ride. Even as we pass through the turnstile of significant dates, August 21 and September 18, most notably, you can bet the joy set before Him, along with the cost, will be counted. Even though we feel trapped in a parallel universe, far removed from our intended plotline, our trust will remain anchored, our times in His hands.

We got this ’cause He had it first. May it be.

Until then, selah and know…

Graphic creds: Tenor; HD Wallpaper

Miracle in the Making: The Jubilee Journey (Part 8)

So lately, I’ve been basking in the early Psalms…

…soaking in security metaphors relative to God’s sovereignty.

No question, this journey is wearing me out. Five days to one month to one year. Like the text on Evy’s new ‘Sleeping Beauty’ t-shirt, ‘I can’t even’…

From driving to work without a modicum of ‘I can’t do this today’ to imaging life a year from now, the writing on the wall is a tattoo on the heart: I can’t because I shouldn’t…but I can because He will just as He always has.

For Lys and I, we’ve been overwhelmed by basic math in recent days wondering why Juby has coded seven times in five weeks not to mention a pair of baggings the past five days alone. We wish we had the answers though we’re learning the freedom of anticipating them in our day-to-day interactions. After all, if our faith is to mature, there must be a catalyst, often a challenging one, compelling our perseverance to discover God in a fresh way.

Perhaps this is why we’re often confused and discouraged but also confident and encouraged at the same time. As for any NICU family leaning into God, not relinquishing their hope, there almost has to be an uncomfortable friction between the emotional and spiritual where in between, perpetual paradoxes are broken down.

For instance, when I hold Juby’s hand, I’m reminded as she clings to my finger, so too must my hope, my trust, my devotion also cling to Jesus. Just like Caeden, Evy, and Milo at her age, she squeezes whatever she can get her hands on and doesn’t let go until I pry it loose. Sometimes, I forget how desperate she must feel, wishing the lines running across her body were gone yet oblivious to the fact this isn’t how a first-year body was meant to function.

Obviously, I know where she’s at and what she’s enduring is short-term within the grand scheme. By God’s strength, she will eventually auto-correct through these setbacks be it six months or six years.

Still, I suppose if there’s a head scratch for me, it comes back to what must I do apart from believing God is who He says He is. As this adventure has taught me, God is glorified in our suffering as we hold fast the confession of our hope without wavering and boast of it firmly until the end (Hebrews 10:23; Hebrews 4:14). However, as I’m also finding, this doesn’t exactly simplify the pathway to touching His robe. In my case, while embracing stillness has been a perk to the load-bearing, I’ve also noted it can keep me idle when God is calling me to motion.

It’s like I’m content to contend…to put one foot in front of the other…but struggle to believe I can get to Jesus in my weakness. And so, on my dark days, I stay where I’m at anchoring in worship and His Word though ashamed I didn’t try harder to make that contact. On brighter days, I sense that slow motion surrender though in the wrestling still wonder, ‘Jesus, can you slow down a little? I know you’re up to something amazing but we just need more of you right now.’

Again, I don’t say this to draw empathy. Rather I say this because I’m desperate…not only to see Juby healed while operating free of fear to whatever intimacy is required…but also to know how the Father responds when any part of us, well, codes! Be it a physical code, a sin/stronghold code, a generational and/or word curse code. Who knows…for most of us, it’s probably a combination of things.

As always, time will eventually stir my pen to capture findings to my curiosities, among them why only one ‘how long’ reference in Psalms actually ties to sorrow.

For now, I bid this post and you, my friends, a fond adieu. This man needs rest and a charge to His best.

Tomorrow, we live to see another day. I will pre-rejoice and be glad in it.

Selah.